0
Scientific Articles   |    
Use of Patient-Reported Outcomes in the Context of Different Levels of Data*
Ola Rolfson, MD, PhD1; Alastair Rothwell, ChM, FRACS2; Art Sedrakyan, MD, PhD3; Kate Eresian Chenok, MBA4; Eric Bohm, BEng, MD, MSc, FRCSC5; Kevin J. Bozic, MD, MBA6; Göran Garellick, MD, PhD7
1 Sahlgrenska Academy, University of Gothenburg, SE-413 45 Gothenburg, Sweden. E-mail address for O. Rolfson: ola.rolfson@vgregion.se
2 Department of Orthopaedic Surgery & Musculoskeletal Medicine, University of Otago Christchurch, P.O. Box 4345, Christchurch 8140, New Zealand. E-mail address: alastair.rothwell@otago.ac.nz
3 Weill Cornell Medical College of Cornell University, Suite LA223, 402 East 67th Street, New York, NY 10065. E-mail address: ars2013@med.cornell.edu
4 Pacific Business Group on Health, California Joint Replacement Registry, 221 Main Street, Suite 1500, San Francisco, CA 94105. E-mail address: kchenok@pbgh.org
5 The Winnipeg Regional Joint Replacement Registry, Winnipeg Regional Health Authority Surgery Program, Concordia Hip and Knee Institute, 200-155 Concordia Avenue, Winnipeg, MB R2K 2M9, Canada. E-mail address: ebohm@cjrg.ca
6 Department of Orthopaedic Surgery and Philip R. Lee Institute for Health Policy Studies, University of California-San Francisco, 500 Parnassus, MU 320 W, San Francisco, CA 94143. E-mail address: kevin.bozic@ucsf.edu
7 The Swedish Hip Arthroplasty Register, Registercentrum VGR, SE-413 45 Gothenburg, Sweden. E-mail address for G. Garellick: goran.garellick@registercentrum.se
View Disclosures and Other Information
  • Disclosure statement for author(s): PDF

This review is a collaboration between the following joint replacement registries that are members of the International Consortium of Orthopedic Registries (ICOR): (1) The Swedish Hip Arthroplasty Register, (2) The New Zealand Joint Registry, (3) The Canadian Joint Replacement Registry, (4) The California Joint Replacement Registry, and (5) The Center for Education and Research on Therapeutics Registry.

Investigation performed at University of Gothenburg, Gothenburg, Sweden, University of Otago Christchurch, Christchurch, New Zealand, Weill Cornell Medical College of Cornell University, New York, NY, Concordia Hip and Knee Institute, Winnipeg, Manitoba, Canada, and University of California-San Francisco, San Francisco, California



Disclosure: One or more of the authors received payments or services, either directly or indirectly (i.e., via his or her institution), from a third party in support of an aspect of this work. In addition, one or more of the authors, or his or her institution, has had a financial relationship, in the thirty-six months prior to submission of this work, with an entity in the biomedical arena that could be perceived to influence or have the potential to influence what is written in this work. No author has had any other relationships, or has engaged in any other activities, that could be perceived to influence or have the potential to influence what is written in this work. The complete Disclosures of Potential Conflicts of Interest submitted by authors are always provided with the online version of the article.

Copyright © 2011 by The Journal of Bone and Joint Surgery, Inc.
J Bone Joint Surg Am, 2011 Dec 21;93(Supplement 3):66-71. doi: 10.2106/JBJS.K.01021
5 Recommendations (Recommend) | 3 Comments | Saved by 3 Users Save Case

Abstract

Update 

This article was updated on January 25, 2012, because of a previous error. In the EQ-5D subsection of the Methods section on page 68, the sentence that had previously read “This, in addition to limited responsiveness for some conditions, has to be weighed against the inherent low response rate of the instrument.” now reads “This, in addition to limited responsiveness for some conditions, has to be weighed against the inherent low respondent burden of the instrument.”

Abstract: 

There is increasing interest in measuring patient-reported outcomes as part of routine medical practice, particularly in fields like total joint replacement surgery, where pain relief, satisfaction, function, and health-related quality of life, as perceived by the patient, are primary outcomes. We review some well-known outcome instruments, measurement issues, and early experiences with large-scale collection of patient-reported outcome measures in joint registries. The patient-reported outcome measures are reviewed in the context of multidimensional outcome assessment that includes the traditional clinical outcome parameters as well as disease-specific and general patient-reported outcome measures.

Figures in this Article
    Sign In to Your Personal ProfileSign In To Access Full Content
    Not a Subscriber?
    Get online access for 30 days for $35
    New to JBJS?
    Sign up for a full subscription to both the print and online editions
    Register for a FREE limited account to get full access to all CME activities, to comment on public articles, or to sign up for alerts.
    Register for a FREE limited account to get full access to all CME activities
    Have a subscription to the print edition?
    Current subscribers to The Journal of Bone & Joint Surgery in either the print or quarterly DVD formats receive free online access to JBJS.org.
    Forgot your password?
    Enter your username and email address. We'll send you a reminder to the email address on record.

     
    Forgot your username or need assistance? Please contact customer service at subs@jbjs.org. If your access is provided
    by your institution, please contact you librarian or administrator for username and password information. Institutional
    administrators, to reset your institution's master username or password, please contact subs@jbjs.org

    References

    Accreditation Statement
    These activities have been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint sponsorship of the American Academy of Orthopaedic Surgeons and The Journal of Bone and Joint Surgery, Inc. The American Academy of Orthopaedic Surgeons is accredited by the ACCME to provide continuing medical education for physicians.
    CME Activities Associated with This Article
    Submit a Comment
    Please read the other comments before you post yours. Contributors must reveal any conflict of interest.
    Comments are moderated and will appear on the site at the discretion of JBJS editorial staff.

    * = Required Field
    (if multiple authors, separate names by comma)
    Example: John Doe





    Related Content
    The Journal of Bone & Joint Surgery
    JBJS Case Connector
    Topic Collections
    Related Audio and Videos
    PubMed Articles
    Telerehabilitation services for stroke. Cochrane Database Syst Rev 2013;12():CD010255.
    Clinical Trials
    Readers of This Also Read...
    JBJS Jobs
    04/16/2014
    Ohio - OhioHealth Research and Innovation Institute (OHRI)
    01/08/2014
    Pennsylvania - Penn State Milton S. Hershey Medical Center